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The Advancing Craniosynostosis Treatment (ACT) Rare Diseases Consortium is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). ACT is funded under grant number U54DE035976-01 as a collaboration between NCATS, the National Institute of Dental and Craniofacial Research (NIDCR), and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818. The content of this website is solely the responsibility of the ACT administrative coordinating center at Children's Hospital of Philadelphia and does not necessarily represent the official views of the NIH.